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Plans for my son's surgery is in the works  email this discussion to a friend?

myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy 1 year ago

Update on my last post about my son.
We went back to the doctors today to discuss more about his surgery. They took more xrays and did a traction Xray where they twisted his body to see if the spine would move. It came out good. They can take it from 100% curve to a 30% with just twisting him. That means that it will make the surgery go much smoother. He may only have to have one.

Also means a little less risk of problems. There are still plenty, but at least it sounds a little better. They are wanting to do it in Mid March. We will have several other appointments before hand and if everything turns out good, it is a go.

We don't feel that we have much choice about whether to have the surgery or not, not is a definite death sentence, and there is a chance to help him this way. Wish us luck and pray for us please.

 

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wheel416 (668) response was accepted on 8/30/2009.
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tags:  surgery, son, cerebral palsy, chance, child
 
1. myLot reputation of 95/100. mjmlagat (1994)   1 year ago

You have all my prayers my friend! Just strengthen your faith in God and continue believing in His miracles. Everything will work out fine, believe in Him. You and your child is in a very difficult situation right now but really, EVERYTHING in this world happens because He wills them to happen. Surely, He will find the way!wub happythumbup


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

Thanks so much!!

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2. myLot reputation of 66/100. plasma (660)   1 year ago

Oh God! How old is your son and how did he developed this thing? This is really unfortunate. I wish him and you guys all the best for the coming days. Don't worry, our medical system has become so advanced that it has can cure almost anything. Just keep believing and he'll surely be normal and healthy in no time.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

My son is 14. He was born with Cerebral Palsy. It has helped the scoliosis along. It has been going on for a long time. The doctor we had before was not showing or explaining much to us. We were not seeing what he was. The new doctor has sat down, now for over 2 hours and went over everything. Just please pray that things go well!!


myLot reputation of 66/100. plasma (660)  1 year ago

Sure. We are all with you praying for his well being. I'm sure it will go smoothly. Keep us updating on this...

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3. myLot reputation of 96/100. dragon54u (10834)   1 year ago

I will say a prayer for your family! I know how scary this must be, especially since no surgery could mean you lose your precious son. I hope you'll keep us updated. It's so horrid when your child is sick, you so much want to take that to yourself and away from them, don't you wish you could? I'll be praying for you.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

Thanks for the prayers. I would love to trade him places. I just could not live with myself knowing we did nothing.


myLot reputation of 96/100. dragon54u (10834)  1 year ago

Have faith, trust your gut. Know that there are people that like you and care about your son. And God loves you all. Rest easy, it will be alright.

Cerebral Palsy Support Online The friendliest site for families who have children with CP.  www.cpparent.com
 
4. myLot reputation of 98/100. GardenGerty (22312)   1 year ago

As a parent it is hard to have to make these decisions.
We will have you in our thoughts and prayers. Is this scoliosis, or something to do with another problem.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

It is scoliosis. I had another post about the 1st doctor visit. We have seen new doctors, and they basically told us that if we don't do it now, it will be too late. The curve is bad enough that in about 6 months, no one will touch him to try to fix it and we will just watch him go downhill to the point that it finally takes his life. The doctor we went to before did not explain or show us any of this, we knew he had scoliosis, and they wanted to do surgery, but even second opinions had told us no.

Two different Doctors in this new hospital have looked at him and his xrays and have come up with the same answer. It really threw us for a loop.

Affordable Cerebral Palsy Therapy We challenge and teach children with CP to be more independent in our intense five week programs. Parents have been shocked to see the gains possible in such a short period of time.  www.abilitycamp.com
 
5. myLot reputation of 99/100. Opal26 (11249)   1 year ago

Hi Thoroughrob~ I am sure that you are doing the best thing
possible for your son. I know that they have made so many
advancements in the surgeries so maybe this will be a blessing
for him. I will pray for him. I hope that he will come out of
this better than ever. You have my thoughts and prayers. It
sounds like this doctor knows what he is doing and is really
explaining everything to you as a good doctor should. I worked
in the medical field so I can tell from what you are saying
that this doctor is taking your feelings into consideration too.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

It made me feel really good today when he shook my son's hand and told him he was part of the family they have there. It was so nice. He is really good with him. With him not being able to talk, you could just see him light up. It helps to have a Doctor that seems to care a little, and talks to you like he would want to be talked to if it was his own kid.

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6. myLot reputation of 95/100. CatsandDogs (5303)   1 year ago

That's great news but I'm not going to do any dancing until he's come out of surgery and you come on here and tell us he's doing well. Bless his heart! How old is he? How does he feel about having the surgery? I can only imagine he's petrified. I was 17 when I had my first surgery and I was petrified but it turned out ok and your son will be ok too. I do wish you luck and you bet I'll be praying for you all!! Hugs hon....


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

He is 14. He is nonverbal, but uses a communication device to talk. He has already had a couple of surgeries, and seems ok with it. He knows what you say and understand pretty much everything, but cannot express himself too good. I just keep going over things to make sure he understands. It is all so frustrating. Keep the prayers coming. It definitely was better news.

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7. myLot reputation of 97/100. DonnaLawson (2805)   1 year ago

It sounds a bit better than the last post, so maybe that is really a good sign.. I will keep your son and your family in my prayers.. The prayers from the last time may have accounted for the better news that you received from his doctors.. I believe in prayer, if we only take advantage of the help from above that we have just for the asking.. I will remember him in my prayers and I hope for the best for him.. I am not praying for him to just get better, I am praying for a 100% miracle, a totally new child with no future problems at all.. A 100% cure for this child.. God hears us, I know that he does.. God Bless and keep us updated, please..


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

It was a bit better. He still has a very big risk of infection or damage to him neurologicly. It is terribly scary. Keep those prayers coming.

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8. myLot reputation of 95/100. Lakota12 (18270)   1 year ago

you know my prayers and energies are going out to both of you hugs!.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

Thanks so much!!


myLot reputation of 95/100. Lakota12 (18270)  1 year ago

your most welcome

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9. myLot reputation of 95/100. kareng (3620)   1 year ago

Thoughts and prayers coming your way! I hope everything goes well and the surgery is a success! Hugs!


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

Thanks so much!!


myLot reputation of 95/100. kareng (3620)  1 year ago

You are quite welcome!

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10. myLot reputation of 46/100. iriscot (761)   1 year ago

Of course you have my prayers and best wishes that your son will have complete recovery and good health after a successful surgery. God Bless. I have 3 sons and I know how painful it is for you when they are having health problems.


myLot reputation of 99/100. Thoroughrob (8364)   ranked 1 out of 21 in cerebral palsy  1 year ago

Thanks so much!!

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